CNN features FCS Foundation and the HEART act

CNN features FCS Foundation and the HEART act

CNN interviewed FCS Foundation’s co-presidents Melissa and Lindsey about the #TheHeartAct2020. It was an honor to share our journey with them. The FCS community is so proud to support this legislation and work alongside so many #raredisease groups, including the...
A Mother’s Story

A Mother’s Story

To My Younger Self After My Daughter’s Rare Disease Diagnosis Dear Melissa, Well, this isn’t what you were expecting. Your mind is racing, you feel numb and you’re in shock. It’s OK. It’s all OK. Because here’s the thing: You’re going to feel a lot of things over the...
Justin’s Story

Justin’s Story

Throughout my childhood, I was a very active kid. I spent many days working on my grandfather’s dairy farm and enjoyed skiing and playing football, soccer and basketball. While to others I seemed like a normal relatively healthy boy, looking back I now can see that I...
Lindsey’s Story

Lindsey’s Story

Dear FCS, “We sure have been through a lot together, and after 25 years, I am still trying to figure you out. You make my life so hard almost every single day. I cannot go an hour without stressing that, because of you, I am going to get pancreatitis. I worry every...
Mark’s Story

Mark’s Story

Being a typical guy, I put off going to a doctor. But the pain eventually became so excruciating that I had to go to the hospital. According to medical resources, the high concentration of chylomicrons in plasma can lead to problems such as acute recurrent...
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