4th Annual Virtual 5K Race Walk

4th Annual Virtual 5K Race Walk

by | Aug 8, 2023 | FCS News

Sign up for the 4th annual Virtual 5K Race Walk to raise awareness for those living with FCS! The Race Walk takes place from September 17-23, 2023! All participants will receive a Race T-Shirt. Thank you for your support for this Patient-Caregiver Event! Register...

HEART Act Celebration

by | Mar 8, 2023 | Uncategorized

On February 14, 2023, FCS patient Giuliana & FCS Foundation Co-President, Melissa Goetz & Congressman Tonko celebrated the HEART Act legislation passing in December 2022. We are thrilled to share news of a significant breakthrough in the fight against familial...
3rd Annual Virtual Fun Run

3rd Annual Virtual Fun Run

by | Aug 3, 2022 | Uncategorized

Sign up for the 3rd Annual Virtual Fun Run to raise awareness for those living with FCS. To celebrate the progress of the HEART Act (hyperlink), the virtual race will take place on The Mall in Washington, DC! Registration Link Here Date of Virtual Run: September...
New FCS clinical trial: The Palisade Study

New FCS clinical trial: The Palisade Study

by | Mar 6, 2022 | CURE!

ARO-APOC3 is an investigational therapeutic being evaluated by Arrowhead Pharmaceuticals, Inc. forthe treatment of FCS. A Phase 3 clinical trial, the AROAPOC3-3001 Palisade Study is currently recruitingadults with a clinical diagnosis of FCS at multiple research...
CNN features FCS Foundation and the HEART act

CNN features FCS Foundation and the HEART act

by | Jul 19, 2020 | FCS News

CNN interviewed FCS Foundation’s co-presidents Melissa and Lindsey about the #TheHeartAct2020. It was an honor to share our journey with them. The FCS community is so proud to support this legislation and work alongside so many #raredisease groups, including the...