HEART Act Celebration

by | Mar 8, 2023 | Uncategorized

On February 14, 2023, FCS patient Giuliana & FCS Foundation Co-President, Melissa Goetz & Congressman Tonko celebrated the HEART Act legislation passing in December 2022. We are thrilled to share news of a significant breakthrough in the fight against familial...
3rd Annual Virtual Fun Run

3rd Annual Virtual Fun Run

by | Aug 3, 2022 | FCS News

Sign up for the 3rd Annual Virtual Fun Run to raise awareness for those living with FCS. To celebrate the progress of the HEART Act (hyperlink), the virtual race will take place on The Mall in Washington, DC! Registration Link Here Date of Virtual Run: September...