The FCS Foundation Board of Directors
Melissa can be reached at firstname.lastname@example.org
Because of this early diagnosis, she was put on a non-fat formula and followed a no-fat, low-fat diet as she got older. Lindsey had her first bout of pancreatitis at age 7, then again at 10, 14, and 17. Once she began college, her stress level increased, her diet changed and she experienced pancreatitis every 8 weeks for about two years. As a result, half of her pancreas is damaged, she had to have her gall bladder removed, has scar tissue, stomach discomfort, and a bit of a
Today, however, with a well-maintained diet, exercise, and a good combination of medicine, she is healthy and has been pancreatitis free.
Frederick F. Saremi
Fred worked as a researcher in the field of Advanced Composites for more than 40 years.
He was diagnosed with high Triglycerides lipid levels, at age 30, it gradually increased to a level of 2600 mg/dL, and at times it was as high as 8000 mg/dL. This resulted in frequent pancreatitis episodes and trips to the Emergency Room. He was also diagnosed with Diabetes Type II when he was 50 years old. As an FCS patient, he has lived with a very unpredictable disease, where pancreatitis could strike at any time. Even when he followed a very restrictive low-fat diet. And he also had to cope with frequent and severe vomiting and diarrhea on a regular basis.
In August 2016 he was part of establishing the FCS Foundation and has been serving as Treasurer. Along with the rest of the board he has been active in participating in medical conferences and has made presentations to the FDA and members of Congress to enhance and promote the cause of FCS disease.
Qingyang (Yang) Li
Yang experienced his first symptoms when he was three months old. He was taken to the hospital because he had incessant crying, rigid body and refused to eat. The doctors were shocked by the high fat content in his blood, but he did not receive a specific diagnosis. His parents were told to not have any more children and that he would not live long. The recurrent severe abdominal pain started at age10 and continued on and off. He received his first diagnosis of pancreatitis in college, but they did not take blood tests to confirm high triglycerides as the cause. He continued to experience more serious and frequent attacks of pancreatitis that prohibited him from obtaining his doctoral degree. Yang came across a book about a diet and recipes for people with high triglycerides. In the first chapter, it listed all the possible reasons a patient might have hyperlipidemia, and this included genetic causes. He diagnosed himself right then and was later officially diagnosed with genetic testing.
Yang is now 41 years old and a research scientist. He lives with his wife, daughter and son in Seattle.
An accomplished geographer and filmmaker, Romal has represented Team USA in national and international geography competitions and has received many international accolades for her documentary. She now aims to apply these interests to her own environmental efforts and initiatives.
Romal strives to make a change in her community, whether at school, at city events, or on a worldwide platform. She is willing to join the next revolution… or start one herself!