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Familial Chylomicronemia Syndrome Foundation Commends FDA Decision to Create New Advisory Group to Support Rare Disease Drug Review Processes

Familial Chylomicronemia Syndrome Foundation Commends FDA Decision to Create New Advisory Group to Support Rare Disease Drug Review Processes

by Melissa | Jan 21, 2020 | FCS News

When a rare disease treatment fails, what happens next?

http://soundcloud.com/rareincommon/episode-10-when-a-rare-disease-treatment-fails-approval-what-happens-next
A Mother’s Story

A Mother’s Story

by Melissa | Sep 20, 2017 | Patient Stories

To My Younger Self After My Daughter’s Rare Disease Diagnosis Dear Melissa, Well, this isn’t what you were expecting. Your mind is racing, you feel numb and you’re in shock. It’s OK. It’s all OK. Because here’s the thing: You’re going to feel a lot of things over the...

Recent Posts

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  • CNN features FCS Foundation and the HEART act
  • Familial Chylomicronemia Syndrome Foundation Commends FDA Decision to Create New Advisory Group to Support Rare Disease Drug Review Processes
  • When a rare disease treatment fails, what happens next?

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