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FCS Foundation
  • Resources and Support
    • What is FCS?
    • FCS Symptoms
    • FCS Resources
    • Genetic Testing and Counseling
    • Clinical Trials
    • Advocating for Your Health
    • Healthy Recipes
  • Patient Stories
  • About Us
    • Meet the Board
    • Medical Advisory Board
    • HEART Act
    • Contact Us

FCS Resources

Information on FCS

Spotlight on FCS National Pancreas Foundation Rare Disease Report on FCS_NORD National Lipid Association Endocrine Society Know Your TGs Lower My TGs Heart UK: An overview of FCS A Mother’s Story – Melissa Termine-Goetz co-founder FCS Foundation

Pharmaceutical Options

Support for Patients Taking TRYNGOLZA® Plozasiran – Arrowhead Pharmaceuticals TRYNGOLZA™ (olezarsen) approved in U.S. as first-ever treatment for adults living with familial chylomicronemia syndrome as an adjunct to diet | Ionis Pharmaceuticals, Inc.

Publications

New England Journal of Medicine – Olezarsen, Acute Pancreatitis, and Familial Chylomicronemia Syndrome

New England Journal of Medicine: Olezarsen for Familial Chylomicronemia Syndrome, A PLAIN LANGUAGE SUMMARY

NIH – Familial Hyperchylomicronemia Syndrome

Science Direct – Familial chylomicronemia syndrome: Bringing to life dietary recommendations throughout the life span

Science Direct – Development and validation of clinical criteria to identify familial chylomicronemia syndrome (FCS) in North America

BMC – Symptoms and impacts of familial chylomicronemia syndrome: a qualitative study of the patient experience

MedlinePlus – Familial lipoprotein lipase deficiency

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