FCS Resources - FCS Foundation

Information on FCS

Managing Life with FCS: A Peer Support Toolbox Resource Spotlight on FCS National Pancreas Foundation Rare Disease Report on FCS_NORD National Lipid Association Endocrine Society Know Your TGs Lower My TGs SOBI Spotlight FCS Heart UK: An overview of FCS A Mother’s Story – Melissa Termine-Goetz co-founder FCS Foundation

Pharmaceutical Options

Exciting news! FDA Approval of REDEMPLO® (plozasiran) | Arrowhead Pharmaceuticals Support for Patients Taking TRYNGOLZA® Plozasiran – Arrowhead Pharmaceuticals TRYNGOLZA® (olezarsen) approved in U.S. as first-ever treatment for adults living with familial chylomicronemia syndrome as an adjunct to diet | Ionis Pharmaceuticals, Inc.

Publications

New England Journal of Medicine – Olezarsen, Acute Pancreatitis, and Familial Chylomicronemia Syndrome

New England Journal of Medicine: Olezarsen for Familial Chylomicronemia Syndrome, A PLAIN LANGUAGE SUMMARY

NIH – Familial Hyperchylomicronemia Syndrome

Science Direct – Familial chylomicronemia syndrome: Bringing to life dietary recommendations throughout the life span

Science Direct – Development and validation of clinical criteria to identify familial chylomicronemia syndrome (FCS) in North America

BMC – Symptoms and impacts of familial chylomicronemia syndrome: a qualitative study of the patient experience

MedlinePlus – Familial lipoprotein lipase deficiency

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