24 January 2017

Welcome to FCS Website

LivingwithFCS.org is a site for all Familial Chylomicronemia Syndrome (FCS) patients, caregivers and family members that offers information, resources and support. The goals of this site are to build connections and offer resources and support to help FCS patients become informed advocates for themselves and their disease. This website will share new developments and information to help patients and families on their journey and is focused on helping to build the FCS community through providing a forum for patients to meet, exchange questions, share challenges, and offer support to one another. Global Genes is able to produce this site with an unrestricted educational grant from Akcea Therapeutics.


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Share your Story

Help others learn about FCS by sharing your story. Your personal journey will help inspire and connect other FCS patients and inform rare disease stakeholders and the public about this rare, autoimmune disease. Raising awareness through story-telling is an effective way to advocate! Email Global Genes to learn more!